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I'm Charlie. I built and designed this website. I have multiple sclerosis, and
TeamCharliesAngels is the name of my support team (they really are angels).
The angels logo was designed by my niece, Stephanie. It is the logo of this website
and is displayed on the team shirts we wear during the annual
National Multiple Sclerosis
Society MS Walk fund raiser.
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My email address is
charlie@teamcharliesangels.com. Feel free to drop me a line or two if you want.
I will respond if I don't get swamped. |
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I may wander off topic sometimes, and I may brag sometimes, but that is the advantage
of owning my website. Please feel free to
email me
with comments or contructive ideas. There is a form for that in
Feedback/Comments.
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As an avid reader, after being diagnosed with multiple sclerosis, I went to the library
to find books about this disease. What a surprise! The library had 3 books in the card
catalog about ms, and the latest copyright was 1989. Next I hit the bookstores (in Las
Vegas, Nevada) to buy a current book about ms. The best I could do there was a
book written in 1998, if I wanted to order it. That's when I found out how little was
know about multiple sclerosis. I now have all the books I can find in print, all 11.
Thanks to the
National Multiple Sclerosis
Society and the internet, I am able to keep informed about my disease. I have
learned over time that the most correct and knowledgeable source of information is the
National Multiple Sclerosis
Society. Perhaps that is why I tell people to get in touch with them so often.
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I have often referred to multiple sclerosis as a disease of a very elite group. Since
there is still so little known about ms, I did a great deal of research to learn about
it. At various times, the symptoms are frustrating, frightening, aggravating,
depressing, worrisome, ridiculous, unknown for both the victim and those around the
victim. It is still a disease that falls into that group that most people prefer to
ignore. If it makes you seem drunk, it is better for all around you to pretend
you are drunk or that nothing happened than to accept that you are having serious
medical problems that can't be helped. Instead of trying to be helpful, people will
often avoid you or treat you like a small child. No person with a health problem needs
whispers and looks between you, we need you to accept what is wrong and try to help us
when we ask. Since we may be unable to do much at various times, allow us to do what
we can when we are able. As our muscles, vision, abilities fade, accept it and help us
as individuals to accept it. When we say "I can't do that today", believe it. When we
say "I can do that", let us at least try, if you can. I didn't say it would be easy.
If this disease is difficult for family and friends to accept, it is much harder for
the person with it. One of the most difficult words in the English language is H-E-L-P!
It just doesn't roll off the tongue when it is really needed by an otherwise or
formerly independent adult!
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